Jun. 29th, 2009 | 06:31 pm
It feels great to have so much energy, but I can't always do anything. I can't be outside doing activities at over 85 degrees, so unless we swim or do stuff in the morning.... We went to see Up this weekend, and we loved the dog Dug. He reminded us of our doggy Dillon. Squirrel! Bear finished robotics camp at Kal's school district, and Bunny starts volleyball camp at my former high school in a few weeks. She is doing a developmental volleyball league right now with the club volleyball courts. They have one week left of games. They have only won one game, but they are still having a lot of fun. The entire team from the YMCA moved over to the youth league, so they aren't having to get used to new teammates. Since this is our team's first time doing volleyball here, it took a little bit for them to get used to it.
Jun. 15th, 2009 | 08:38 pm
Soooooo...... I've been away a while, but I am going to try to pick up the posting. LOL
I have no idea where I left off with the last post, so here is a brief recap:
*after living with GrammyRose for almost 2 yrs, we bought our own new home
*adopted a giant Golden Retriever named Dillon that brings joy everyday
*our sweet Misha kitty passed away and it broke our hearts
*KalBot started college with Western Governor's University
*Bear finished 7th grade and Bunny finished 3rd grade
*we walked the CFF Great Strides Walk and raised just over $2500 in donations
That is pretty much it...oh and we found and rescued a baby bat today. We named him Fritz. :)
Mar. 4th, 2009 | 09:08 pm
mood:
exhausted
Today was the BIG moving day! The movers arrived about 8:45 this morning while I was taking BearKal to junior high. KalBot, GrammyRose, and I helped direct the flow of furniture and boxes. The scariest part was watching the men try to get a sectional around a corner and up a flight of stairs into the game room. Blessedly no injuries to man or house occurred. :) Even after much advice to not overdo it, I think that I did. I kept thinking, "just one more box." I crashed hard on the couch upstairs, and it seems I snored horribly. LOL Of course when I woke up I had a KalBot asleep on the other end of the couch. :) We aren't going to spend the night there until Saturday night most likely because we aren't getting the fridge and cable/internet until Friday, and BunnyRose has a slumber party that night. We don't want to spend the first night there without her. :) Back to sleep for me. :D
Feb. 23rd, 2009 | 10:56 pm
mood:
silly
I was just sitting here playing on FB, and I could hear KalBot giggling next to me. I finally looked over and he was reading my blog from the days in ICU. I started glancing over when he would laugh, and I started cracking up also. It seems like forever ago that I was playing the trumpet on the vent, listening to constipated cows, watching Kal brain himself on my bedrail, scare the nurses with my laughing fits, and dressing up like an escaped mental patient for PT! ROFL Those were some good times I tell ya! No question that it was some rough going on some days, but oh boy did we have some good laughs in between. I don't think that anyone can deny laughter really is a great medicine. I had a funny thing happen the other day at Build-a-Bear. This little boy of about 3 was trying to get around me, and he said excuse me and just stared at me. I was thinking that he was probably thinking I was a slow moving lady. It wasn't until about an hour later when we were driving home that I realized he was probably staring at my mask! I had totally forgotten that I had one on. :) I think that is a defining moment. It isn't that I am finally used to wearing the silly thing, but it is the fact that I feel so "normal" that it didn't occur to me that I was any different. Now THAT is odd. LOL It has been years now that I have moved around with things stuck to my face, so I am slowly getting used to blending back in with everyone. I guess that I need to do something else to myself to stick out like a sore thumb. I vote for pink hair. I can't get the tattoo or the piercing, but the lungs I got came from a person who had gotten a tattoo in the past year. I guess that will have to count. Sadly I no longer make the horrifying coughing noises to scare the snot out of KalBot, but I do make a new noise. When I do my spirometry, I tend to make an extremely loud, indescribable noise. Tonight as a matter of fact, the noise was so bad, that I could just FEEL KalBot looking at me. I started laughing mid "huff", and I had to look at him with my evil eye. He was laughing and said that he was hoping that I would not notice. LOL Too late! At least MomoCat is no longer scared of the huffing MommyMonster. He used to hiss at the portable spiro machine, and he would run when I started blowing. I guess for fun now I need to get out the PediPaws and chase him around. >:) On another note, I finally got to jog in the neighborhood with KalBot yesterday. We have been walking a couple of days a week, but I was too chicken to run yet. I was sure that I would look like Super Dork trying to job, but it wasn't too bad. We only jogged about half a block, but considering I haven't done that in many years, I consider that a success. I guess that we will hit the track one day this week.
We close on our new house at 10:30 Friday morning. :0) We will probably just get our junk out of GrammyRose's garage for now, and we will wait a week to have the stored items delivered. Spring Break is just a couple of weeks away, so that will give us plenty of time to move stuff. Any budding painters out there? :P BunnyRose wants to live under the sea with Nemo, and BearKal wants dark green forest world. We had to talk him out of metallic gold and silver. I don't really think the nightclub look works for a 13 year old. I am torn between chocolate brown and slate grey for the dining area. I have all these great plans for KalBot and others to do since I can't paint. LOL I can tape, but the fumes are a no-no for me. Dr. B said that it would even matter if I got "green" paint that is formaldehyde free. Fumes are fumes. I guess that I will just be on the other side of the house lining shelves and putting away dishes. :)
Feb. 20th, 2009 | 09:30 pm
mood:
bouncy
Today BunnyRose turned 9! We planned to take her out to dinner tonight, and we weren't going to tell her where we headed. We surprised her by going to Buffalo Wild Wings. That girl loves her some ribs and wings. LOL Tomorrow we are heading to Build A Bear, and she will take some friends to play laser tag in a couple of weeks. It looks like we are closing on our new house next Friday! I told BunnyRose that I felt like it was better to plan a friend party after we had moved and weren't in such a crazy time. It will have been less than a month from starting to look at houses to closing. I am so glad that we found a great house so quickly. I bet my furry trio will be so happy to get to roam freely again. There is storage under the stairs in the new house, and I plan to store a lot of the medical equipment that I no longer need in there. I will like getting to have that stuff put away. :)
Feb. 19th, 2009 | 02:50 pm
mood:
excited
My Clinic appt. yesterday was great! My spirometry is up on both numbers, and the x-ray looks good. I don't remember the last time I didn't get some sort of comments about shadows or minor things on the pictures. I still haven't heard what the blood test levels were, so I hope that the Prograf levels are still stable. I did find out one interesting thing however. When Dr. B was trying to to find out how many times I was actually treated for rejection, he was going through all my previous bronch results. It turns out that I tested positive for RSV shortly after the transplant! Now that shocked me. I have been tested for that in the past, and I always came back negative. Dr. B said they were very surprised. I was too! LOL It is a really bad virus for preemies and infants/toddlers. In the fall the hospital at Cooks was always a "dangerous" place to be because I had to be careful not to catch RSV from someone in the hospital. I find it ironic that I tested positive for it in an adult hospital while in strict confines. I could have caught it myself, but I wonder if my new lungs already had it. I guess that I will never know, but at least I got past it without any bad results.
On the good side of things, we are buying a house! We have completed the option period (I believe, or within one day of it) and are just waiting for the VA to complete all the paperwork and get it back to the lender. The new house is just around the corner and about 4 blocks down from GrammyRose. The kids are very excited! We could close on the house next Friday at the soonest. I hope that I remember to do laundry and cook for more than just one. :P
Feb. 5th, 2009 | 12:53 pm
mood:
cheerful
Okay, yet again I let time get away from me. :) I had another blood test for Prograf levels this week, and my levels are a little low again. It seems like I am adjusting the levels every 5 days. LOL As long as it keeps working, I don't mind. I have Clinic again next week, so we are going to try to move my next blood test to that date. I can't get to Clinic and get Bear to school when Grammy is working, so we have been shuffling tests around. At least we aren't frozen in anymore! That really messed up the testing a couple of weeks ago.
Kal and I have finally started looking at houses. :) We took the whole clan last night to look at our favorite, and the kids went nutso. I had told them not to, but you know how that goes. LOL This house is literally around the corner, so the kids wouldn't have to switch schools yet again. It is on the same street as Tinkerbella's parents. :) We will see how everything works out. I guess that I should start purging items now so that we don't haul stuff to a new house that will just end up in an attic. This house would have a "cat room", so the cat box would be locked away. Yay!
My hair is still thin and thinner, so I decided to get about 6 inches cut off. It is now about midway between shoulders and chin. It actually did make my hair look a bit thicker, so I am happy with it. It is also less tangled after I wash it. LOL
I have been keeping up with my exercises at home since ending rehab. Bunny likes to do the exercise dvds with me. I have the 8 Minute Core series and the 10 Minute Abs dvds. So far we have just used the 8 minute one, but it is just right for my ability at the moment. I have also been riding the little bike pedal machine that we got from the neighbor. I use it while I catch up on the DVR'd shows or read my book. I am re-reading the Twilight series. I read the first two again in the last two days. I just love them. LOL
Jan. 27th, 2009 | 12:58 pm
mood:
sleepy
Yesterday was officially my last day of pulmonary rehab. It seems like I have been attending sessions forever, but I am only on day 120 post-transplant today. That is a YAY! Of course today when I want to go outside and play basketball or walk for my exercise, it is getting icy and staying at 30 degrees. I can't be out for a long period of time when the temperature is lower than 45 or higher than 85 (I think 85 is correct). I think Kal has a secret weather controlling satellite hovering right over N. Central TX just to keep the weather bad enough that he won't have to jog with me. :) I accidentally forgot to go to my blood work appointment yesterday morning, so I had it rescheduled for tomorrow morning. Now the forecast shows the weather could actually be worse then. Joy. I guess that if I can't safely get there then I just will have to reschedule again. Maybe I need to find a lab around here to use when I simply have blood work to do on non-Clinic days. The kids were disappointed that we didn't have school closings today. UT-Arlington is closed, but the AISD isn't. I am sure when they find that out they will REALLY be mad. LOL I am really tired today. Apparently now that I have new lungs, I snore terribly. LOL I guess now that I actually get air into my body I am able to make noise. I should just tell Kal it is revenge for all the years of his snoring. :) Though it could be that I am tired because of Sammo climbing all over me during the night. Those cat feet HURT when they are pressed against your chest for what seems like an eternity! The cats must have been cold because they hounded me a little more than usual last night. I always feel bad when I stretch out my legs and boot some furry body. :)
Jan. 23rd, 2009 | 08:21 pm
I was officially discharged from the physical therapy side of pulmo-rehab today. I just have one hour for the respiratory therapist on Monday, and then I am officially finished with pulmo-rehab! Yay! I did 4 miles on the exercise bike today while I read my new vampire book (not from the Twilight series). I walked one mile on the treadmill, too. Today was the first time I walked at an incline of 1.5, so I wonder if I will feel it tomorrow. LOL Bear is sick, and he is supposed to take the SAT in the morning. I don't think that he will make it. His cough is so bad in the mornings, and I have to give him aerosol treatments. He is on steroids and an antibiotic for the next several days. I think he will just be too tired from poor sleep over the last few nights. Bunny has a basketball game tomorrow afternoon, and I they have team pictures right before the game. I am going to check out the walking programs on GrammyRose's treamill so that I can figure out my next workout plan. I need to use it three days a week, so I need to find some other fun things to do on alternating days.
Jan. 16th, 2009 | 08:23 pm
mood:
crazy
Ok everyone must now stand up, back away from the computer, and do the CABBAGE PATCH! (If you have no clue what I am talking about, look on YouTube or something. LOL) My biopsy results from yesterday's bronchoscopy shows NO REJECTION! Therefore we must all celebrate with the cabbage patch. No, you are not standing there like a doll with your name on your bum! You should be grateful that I didn't say the Running Man or the Hammer Dance. :PDrewBysh said that he did it, so now you have to! Come to think of it, you must also video yourself and send it to me. Muahahahahah!
Jan. 16th, 2009 | 09:24 am
mood:
satisfied
Yesterday was my regularly scheduled Clinic appt. and my 3 mo. post-transplant bronchoscopy. The visit with Dr. R went very well. My x-rays are looking good. Some something-or-other that was there is now gone. LOL I still have some marking on my right side, and it seems that my diapraghm doesn't work as well on that side. The fact that the diapraghm has trouble explains all those horrible cramps that I had in that area when I would cough hard for a prolonged period. It would hurt so much, but I never knew what caused it. I asked him if that could be the reason for the cramping, and he said yes. Mystery solved! He thought that he felt my spleen, so I am having a sonogram of my spleen on Monday morning just to check it out. I hope they warm that gel! Brrrrr. I actually have to go on a diet plan! ROFL It is sort of funny since I had such a hard time gaining weight at first. I asked him if I can follow a real diet plan, and he said I could. I just had to go get my vitamin levels checked first. I am going to follow the Weight Watchers points plan. I will have to modify it some since I have absorption issues to worry about, but I just need to drink fewer Pepsis and more water. That is the hard part. I have to go back on one of the medicines that I just came off of because Dr. R likes CMV mismatches (like my donor and me) to stay on it for a year. He said just to save the other med that I have because I will eventually go back on it. My pfts were better than last time, and I had been a little concerned since it was so cold outside that morning. The cold air can make me wheezy, but I lucked out this time. Grammy brought Bunny with her to pick me up from the bronch because the kids got out of school early due to finals. Bear got to stay home since 13 year olds get bored sitting in waiting rooms for hours...apparantly 8 year olds do to. :P I was back in the recovery/waiting area getting my IV, nasty bile med, and secretion drying shot when I saw Bunny come up next to my gurney! Dr. R had brought her back to visit me. :) Yay! He was asking her if she wanted to do the procedure on me. She just shooked her head like he was silly. I told him to ask her again in 20 yrs. LOL Bear got to spend the afternoon playing Maple Story on his laptop and eating cookies, cookies, cookies. Sneaky boy!
Jan. 14th, 2009 | 12:13 pm
mood:
busy
So...I got a little behind on my updating I see. :) Everything is going extremely well still. I only have about 4 or 5 pulmo rehab visits remaining. I am now up to one mile on the treadmill, a separate 20 minute walk, the third level of difficulty on the arm bike and the regular bike. I am using the giant exercise ball to make my leg exercises more difficult. Gotta work that core! ROFL Keeping your balance is really difficult sometimes when your mind starts to wander. :P I rode 3.48 miles on the bike today. I still haven't gotten to jog at home yet, but I have jogged three times at rehab. I might just wait to jog at home until I am finished with rehab because I want to skip days in between. If I jog at home on my days off from rehab, I will be doing everything on back to back days. Bear ran 1.5 miles in athletics the other day without stopping! I am very proud of him. Now he can't tell me that he can't jog with me. LOL I am actually getting to do some school pick-up/drop-off now, and it is just like old times. Really, really old times. :) The cats have finally figured out where I am! Much to Kal's and Grammy's dismay. LOL Since Kal and I are finally sleeping in the same room again after over three months, the cats are now rooming with Bunny the Tormentor. We started letting the cats visit occasionally, and they really liked getting to be in Mommy's room again. It started with just a few minutes. Then a couple of hours....Then all day.... THEN the trouble started. Misha decided that bellowing at the Bunny's bedroom door would force someone to bring her to Mommy. Okay, at first it was really cute. Bunny started getting annoyed however, and eventually she started kicking MIsha out every time she started meowing. The estrangement would only last about 15 minutes before Bunny would come back asking if I wanted her to take Misha back with her. I would say no since she had barely been in my room, but then Bunny would start arguing with me. I would cave in and then Bunny would leave with the cat. SLAM!!! The door would fly open, and I would hear, "I can't take it anymore! Misha won't stop howling!" ROFL This cycle still repeats itself several times a day. :P Goblin was longer in coming into the bedroom. She is my sweet baby, and I am sure that she has arthritis in her back legs. I didn't want her to have to get carried back and forth because I think it is uncomfortable for her. Well, she wasn't having that! Eventually she started following Misha out of the door. Sammo figured out where the party was also, and now the cat train is continually going back and forth from their room to my room. The biggest problem is that they are afraid they are going to get stuck in there, so they eat and potty as fast as they can and want right back with me. Misha will claw at the carpet or the door, and Grammy HATES that. :) Sammo has learned how to thump the door stopper on the back of the door, so you hear, "BOING, BOING, BOING," until you let him out. Goblin is pretty laid back though and lets the other two do the dirty work so that she doesn't get in trouble. LOL Of course she will roam occasionally, and Grammy noticed her coming OUT of the back bathroom. The funny thing was that she didn't notice Goblin going past her to get there! LOL I am back to having my babies sleeping with me, so I seem to be the doorkeeper during the middle of the night for the potty breaks. Oh well, it could be worse. At least I am not near the dirtbox, and I get to see my little furry babies. :) Tomorrow I have another bronch to see how the rejection situation has resolved. I am really feeling great, and my blood pressure is much lower since I have changed to Prograf. My main problem now is the weight. I really need to figure out a plan to lose some of this extra weight. I never thought I would have that problem post transplant, but I guess that I am one of the unlucky ones. I have told Kal that I am going to stick him on the Nutrisystem for Men - Diabetic diet plan, and I want to try it myself. LOL Maybe I will follow my own Weight Watchers version like Tinkerbella did. I still have the sites bookmarked I think. I am on day 107 post transplant now! I am still amazed. :D
BTW, Bunny has started her first basketball season, and I got to attend the first game. They won! Go Shark Shooters! Go #10!
Jan. 5th, 2009 | 09:33 pm
mood:
accomplished
Guess who JOGGED today! Woohoo! Now I am still taking baby steps, but I did jog on the treadmill. I did my warm-ups, 15 minute walk, and balance ball exercises first, and then the PT asked me if I wanted to try jogging. I had been telling them that KalBot and Bear had plotted against me to keep me from making them jog with me. I think that I-Don'tWannaJogBot conspired to make me too sore on Saturday to jog, and Bear made it cold and rainy today so that he wouldn't have to jog at school or with me. LOL Its true...they did...I know it. :P For the jogging, I walked for one minute, jogged for 30 seconds, and then walked for 1.5 minutes. I think that I did 4 rotations, so I jogged for 2 minutes today. That is a huge step! It was really exciting. My monitor didn't like my heart rate hitting 147, but considering that in the summer I had a 155 - 160 heart rate after walking to the bathroom, I think 147 is great. :) I easily got my rate back to normal when the walking resumed, so obviously I am getting there physically. I had to call Transplant Clinic to clear up a medication problem, and my coordinator was really excited when I told her that I jogged. It is so cool that I almost feel like a shouldn't complain if I am sore tomorrow...ALMOST! If I am as sore as I was on Saturday, I give up! I almost couldn't get up and down by myself. It reminded me of when I got home from the hospital, but it was a tad better. LOL The last two rehab sessions have made me very sore, but it was different parts of my upper legs each time. It also lasted only one day, so it could be worse. Even though I stretch when I get home, it still is a lot of work on my body. The PT told me to Google a website that is something like Couch Potato 5K. It gives you a step by step training plan to get to a 5K. I don't think that she even knew that it was my goal. I still need to check it out, but I already told GrammyRose that we are all going to do it. :) Muahahahah!
Dec. 31st, 2008 | 09:14 pm
mood:
content
We are spending NYE as we usually do...sitting at home on the puters. :) Bear and Bunny have made pallets in the family room, and they are watching some special on Toon Disney with the show Pucca. What a weird show... The four of us went out to lunch with KingToad and J today for our late Christmas get together. J got me some super cool decorated masks to wear. Some have cute little charms on them, and others have lace or fabric sewn on. I can't wait to wear one to rehab on Friday. :) We ate at Chili's, and Bunny ate almost a full rack of baby back ribs. No joke! That girl can pack it away! Bear got a giant chocolate shake to celebrate his 13th birthday, and he sure did get some massive brain freezes. LOL This was only the second time that I have gone to a restaurant since the transplant. Bear's birthday was the first time, and I am so excited to be able to go out again. I will be able to drive starting tomorrow, but my van has a dead battery after so many months of sitting in the driveway. KalBot needs to mosey on out and get it ready for me. :) I hope that I can remember how to drive. :P I have about 8 - 10 new books to read, so I need to get started on something other than a Twilight book for once. :) My boxed set will be coming in about 4 weeks, and then I can read those all over again. :) I don't take those to rehab to read because they are so large and in hardback. It is much easier to hold a small paperback while riding the exercise bike. I have books for 5 or 6 different series waiting to be read. It is a big problem when you are caught up on all the new books for the usual series that you read. I have had to start a couple of new ones. :P
Dec. 29th, 2008 | 10:59 pm
mood:
giggly
Yesterday was my Sweet Bear Bear's 13th birthday! Yay! We all went to Dave and Buster's and took our friend Drew along. The food was really good there. Bear got his traditional chicken fingers, and Bunny, who is on a new BBQ kick it seems, got ribs. She had sauce all over her chin at one point, but she managed to stay clean. She even shared at wet wipe with GrammyRose who was all saucy from chicken wings. Very sweet! Bear was sitting next to Bunny, and she kept wanting to steal his fries. He didn't like that idea, but it wasn't like he was eating them. Silly Bear. :) Now Drew has had the full Rose-Kal Family initiation. We'll see if he still wants to be friends with us now. :P If he doesn't then, I will break the leveling pact on CoH! Muahahahahaa! :P The two big ManKids played shooting-flying-fighting type games while I played my favorite ticket games. The kids spent almost their entire first load on their game cards playing crane games. Bear has never had luck with them (just like his Mommy). Bunny on the other had won a giant, white stuffed seal, a Love necklase, a watch for her, and a watch for Bear. :) The awesome thing was that when Bear was upset about not winning the watch, she just walked up and said, "Here [Bear] I won this for you." It was so sweet, and he got much happier instantly! I raked in the tickets at my little coin drop game (where you try to push the coins off of the ledge to win tickets). I ended up with 1900+ tickets. W00t Mommy! Bear had about 800, and Bunny had about 500. I got a giant stuffed poisoned dart frog. He is now named Ribbert, and he will meet his purple shimmering poison dart frog girlfriend Cha-Cha whenever she comes out of storage. LOL Bear spent all of his tickets on that nasty Sweet Tart gel in those tubes. Icky, icky, blech.... I think he bought 5 tubes for 800 tickets. Bunny didn't have many tickets, so I let her have the remaining 300 on my card. She ended up with a thumb trap, two tart gel rope kind of candy - not sure what it was, and 2 nasty Sweet Tart gels. She ended up eating one in the car on the way home, and then she gave Bear the other one. He promptly got excited because even though he had just eaten one he would still have 5. ROFL We headed to GameStop following lunch so the Chicklets could spend their GameStop giftcards and allowance monies. (Is that the word cousin SA commented about Bear saying when he was about 3?) Anyway...Bear picked out his 5 games fairly quickly. We lucked out that his birthday fell right during the Buy 2 Used Games/ Get 1 Free. He got DS, PS2, and maybe one other platform games. Bunny had great, great, great, great difficulty choosing. OMGosh did she take a long, long, long, long time. I think we aged another year. LOL She didn't have as much money or gift card amount to spend, but she still could have found a lot of great games. I had a feeling that she was just wanting something really expensive and was sort of stalling to avoid asking. I finally spotted her the owed allowance to get her a new PSP game since she only had one, and Jared had 4. She ended up spending her money on Disney Dance Dance Revolution. I tried it, and I think I need to do the tutorial a few hundred more times. LOL We really want to see DaddyKal try it out. He was not interested, but I told him that maybe they have a "tap your foot" level. <snort> I think it will be a fun way to exercise when pulmo-rehab is finished. I need to find a way to repair our Wii Fit disk so I can do that again. Any advise on how to clean or repair a Wii disc? I want to do the step program on there. I need to find creative exercises to add to my Total Gym, treamill, hand weights, and exercise bands. We will walk outside with Baby Brudder more now that he has a new lead. I think he might have eaten the other one. ;) The Wii Fit and DDR will be great for days that are too hot or when I am too lazy to get out of my pjs. That happens a lot. What?! I like 'em. Who wouldn't be addicted to comfy pj pants after more than a year of being in bed all the time and never getting out of the house. I probably own all the Old Navy pj pants ever made! Ok maybe just half. :P I think I am going to post some birthday pics up here and maybe some Guitar Hero pics on the Christmas post. Have a great week!
(Not edited for spelling or grammar...too tired :P )

Dec. 29th, 2008 | 10:44 pm
mood:
sore
This was another tough rehab day. I actually had sore hips for most of the afternoon, but the soreness has gone away for the most part. I have finally been authorized by the insurance company to have 9 more sessions. I am now at .94 of a mile on the treadmill, and the goal is one mile in 30 minutes. I just have a smidge more to go, but it is so boring walking on the treadmill and just looking at the wall. I have lost the charger to my MP3 player for the 2nd time, and I am not going to buy another one this time. It was in my room before the transplant, so I KNOW it is somewhere in there. LOL Maybe one of the cleaning elves remembers seeing it. :P I could listen to the Twilight Soundtrack to keep me happy. :) The RT kept the tension at the same increased level for the time on the hand-bike, but I went for 6 minutes on it instead of 3 as I did last time. I think she was trying to distract me so I wouldn't notice. LOL I only rode the exercise bike for 15 minutes this time since we increased the difficulty on that for the first time. I got so hot that I figured I was dripping everywhere. I had to get out my tissue and wipe off my face. Yuck. I made it all the way to the end of the time though. The PT turned the fan on me when I was done, and then we also moved it over to the treadmill for that 30 minutes. It helped a lot. I moved up to 3 lb. hand weights, and it was tough! I can't imagine the people using 10+ lbs. Ouch! I only did 2 sets of 12 reps instead of the usual 3 sets, and I had to stop two or three times. Of course one of those times was to poke Kal who came and decided to aggravate me while we waited for the last hour to end. :) I stuck my tongue out at him, but the stinking mask sort of ruined that. LOL While I was gone Baby Brudder decided to make a break for it out of the garage. GrammyRose got him back and was going to treat him with some American cheese. It seems that he doesn't like it because he spit it out! ROFL In the end he was satisfied with cheddar. Spoiled much? :D He is too cute for his own good.
Dec. 25th, 2008 | 10:50 pm
mood:
amused
Wow what a busy two days we have had in the Rose/Kal/Bear/Bunny/Grammy household! Monday was my usual pulmo-rehab appointment (shortened by one hour followed by my 2 hr IV), and I told them that I would not be there on Wednesday since it was Christmas Eve. We went to my aunt and uncle's house for our traditional Christmas Eve pizza party. Let me tell you that you have never seen anything like the awesome insanity that was our family! W00t! It started out all innocently with us gathering and eating nicely. My aunt mentioned in passing the giant Nerf dart gun war that her immediate family had recently had. I must admit that my newly "healthy" self was a bit jealous and intrigued by the idea; however, I didn't really want to be one of the shooters - just an observer. A while later, the onslaught began! I am not quite sure who started it, but I think it is a good bet that JG did. :P My sweet baby cousin (okay so he is in his mid-20s) would run around through the kitchen, dining, family room to get his target. Soon, cousins MT and JR were involved. I noticed my two angel children grab up two of the six Nerf guns and eagerly join in. I was still sitting at the kitchen table greatly enjoying the war! Woohoo! Then the most dangerous thing happened...an un-named cousin shot cousin SA. She turned around with the most hysterical look on her face, grabbed someone's Nerf gun, and ran after the offender yelling, "Oh its on!" I just about busted a new lung! :) KalBot had to remind her to cock the gun first, but soon she was tearing after victims just like everyone else. Uncle L, JG, and MT were running around with Bear and Bunny, and MT only tried to take himself out with the wall or door twice. LOL His girlfriend was the best assistant to him because she would grab up all the fired darts and hand them to him. He seemed to never run out! :P Finally it got totally insane with GrammyRose getting pelted in the head/body by almost everyone who had a weapon, and she finally started confiscating the darts as she was hit. ROFL Everyone involved was really laughing, and of course when an innocent bystander (like ME!) was hit, the shooter was totally razzed. I just sat minding my own business at one point and felt a dart buzz my eyelashe! JG will PAY!! Muahahhaha! I think my dear KissyBot shot me few times as I innocently read Eclipse (3rd Twilight book - THANK YOU A.T.). I will find a way to really get him back. Hmmmm....maybe some Christmas photos of him on the blog..... Bear and Bunny raked in the gifts, and they somehow even got me to sing along with the Guitar Hero World Tour band kit. I never sing karaoke or anything, but I did a decent job with a Blondie song. :) Thinking back to last year, I would have probably been asleep somewhere at my aunt and uncle's house, and then I would have been napping today and probably not been able to make it to my in-law's for dinner. We had a great time there tonight, and my mom-in-law even mentioned how great it was that I was able to attend two party days in a row. Amen to that! There would absolutely have been no way last year for me to actually have enjoyed myself so much. We had more than enough to bless us this year, and I hope that we can be good examples for people going through the same struggles. I would have never expected to be in the great situation that I am in now. I never really planned ahead for more than a few weeks because I knew that I would be getting sick again. Even in the immediate days following transplant, I fully expected to be in horrible pain for a long stretch of time. How wonderful it is that I have had such a relatively easy recovery. My blood test from Monday showed that my new dosage for the new anti-rejection drug is finally good! I have another bronch on 1/15 to see that everything is reversed from the acute rejection I showed in the last two bronchs. I feel better than ever right now, and I look forward to newfound freedoms at the start of the New Year. I will finally be able to drive and go out to movies/restaurants. I am campaigning heartily for KalBot to take me to see Twilight over the break since I have a newfound obssession with it. I blame Frazier, Ravyn, and many other online friends (along with my physical and respiratory therapists). I had no interest in reading those "stinking" books. Then I did, and UH-OH! We are talking major fascination here. LOL I got the soundtrack and now I can't stop listening to Supermassive Black Hole by Muse. I am in trouble. LOL If you have seen the movie, this is the song from the baseball scene. :)Edited for pics 12-29-08

Dec. 19th, 2008 | 10:34 pm
mood:
cheerful
Yay its Friday! Wednesday's pulmo-rehab was just odd. I didn't do anything differently, but I did have a sub RT. My RT, was gone due to her mother being ill. There were two RT's who split her shift, and I had worked with one last week. They were both extremely nice, so they weren't the odd part. :P I did the usual: bike 20 min., 12 1/2 min. walk (gasp!), leg work 2 sets of 15 for each exercise, and then 26 min. on the treadmill. Yeow! I was supposed to work 15 min. on the hand-bike, but wouldn't you know that we ran out of time..darn. :) I only got to 6 1/2 min. The odd part was that my arms were really sore after the hand weight exercises, so when it was time for the hand-bike, I knew that I wouldn't be able to get to 15 easily anyway. I had only gone up to 15 on Monday for the first time ( I think ). The RT was really nice because she knew my arms were hurting, so she wasn't going to make me go for 15 anyway. Then later when I got home, I was walking to the mailbox, and it felt like my legs were going to buckle. Umm HELLO! That hasn't happened since I got home from the hospital. I actually started laughing because it startled me. I have taken for granted that I have my strength back. I had better not get too cocky about things. I didn't come close to falling or anything like that which is good because GrammyRose would have backed over me in the driveway. LOL By the time I went to bed, it still felt like I was working my legs. I am surprised that I slept. I felt great on Thursday, and I even had to walk around the hospital for Clinic. I know that I didn't overwork myself to the point of risk. I think that i just had a weaker day. My Clinic appt. was great! My spiro is up higher than it has been in quite a while. My Prograf level was a tad low so they just upped the morning dose by .5 mg. My x-ray is the same/stable. I wish the weight would go down more, but I am tapering down on the Prednisone again during the first week of January. For the first time in memory, I didn't get shin splints either! That is shocking on its own. :P Today my regular RT was back, and I expected everything to be business as usual. Then I got major calf cramps during my 12 1/2 minute walk! I stopped twice to stretch during the walk, and I had done lots of warming up first with the leg work. Finally I decided to quit at around 10 minutes. I NEVER do that. I wasn't mad at myself (which I usually would be) because I greatly dislike 12 1/2 minute walks, and I didn't mind slacking off some. >:) The PT got one of the belt straps, and I spent time doing calf stretches three different ways. It worked like magic. I only had to ride the bike for 10 minutes since I had the leg pain. I did the arm/leg machine that I have learned is called the Hydrofit. When it was time for the hand-bike, I figured I was up for 15 minutes of torture again. Instead K upped the difficulty a bit, and I only had to do 3 minutes. It was definitely enough for me. Ouch. Today was the first day for isolated muscle tensing for relaxation. I had done it before when I took yoga (back in my pre-retirement days at AHS). It was going great, and then she told me to focus and relax all my muscles. Then my phone rang! ROFL We got a good laugh about that. It was the Clinic updating me on a prescription refill. I actually finished rehab 15 minutes early today, and it was the one day GrammyRose was going to be a little late getting me due to BearKal getting out of school at 11:50. I get out at 12:00. I just sat and read the book I borrowed from one of the PTs. I am reading...Twilight. And...I LIKE IT! Aaaaahhh! Yeah, it is based in high school, but OMGosh I crack up so much. I think the girl reminds me a bit of myself. It must be the sarcasm. <snort> I am only about 150 pages into the 500 pages, but so far I would recommend it. It is a very fast read, and I am hooked. When I finally decided to go outside and wait for GrammyRose and my little minion, I heard sirens from motorcycle cops. I assumed that it was a funeral procession since the hospital is across the street from the funeral home and cemetery. (Do you think they get kickbacks?) I was surprised when the officer turned towards where I was instead. Then I noticed a house coming down the street! No joke! It was a manufactured home, and I have never seen one on the road in this part of town. I always see them on the highway. I got a kick out of watching it. BunnyRose got out of school about 1:30 today, and then she had her first basketball team practice tonight. She had a blast! Even though she seems to be so tall, she is the next to shortest one! ROFL That will be fun to see at the first game. GrammyRose took her to practice, but I will be able to go to games and stuff in January. I will be able to drive again then, too. I will have more freedoms, so LOOK OUT WORLD! Muahahaha! :D
Dec. 15th, 2008 | 01:40 pm
mood:
drained
Today was "Let's Torture Rose's Arms Day" at rehab. LOL I had to do the evil hand bike for 15 minutes after I did the three sets of 12 reps on the exercise machine. I do two arm exercises and one leg exercise on it, so my arms were a little tired after doing those. I rode the bike for 20 minutes, and I walked for 25 on the treadmill. During the session with the PT I also did a 10 minute walk. It was crazy. LOL I only have three sessions left after today, but the RT and PT want to see if 2 more weeks can be authorized. I am really close to meeting the goals they have set for me, but we just need a little more time. I need to get to: 30 minutes on bike, 30 minute mile on treadmill, some hideous number on a higher level on the arm bike, and a 10 - 20 minute walk. That is a lot of working! I was thinking about the first week that I went to rehab, and I don't think I could have imagined being at the status I am in now. It feels so good to be able to do the exercising even when feeling the burn seems to drag on forever! :P
Dec. 13th, 2008 | 04:01 pm
mood:
satisfied
This time my Prograf levels were a tad too low, so I have to add one capsule to my morning dosage. The sinus wash came back negative, so I assume this means it was an allergy issue and not viral or something. I do feel better overall, so the antibiotic did help. I have spent so much time waiting at the hospital and on the bike at rehab that I am on my third book this week. LOL Next Thursday is the regularly scheduled appointment for Clinic, and I will just have the Prograf levels checked again while there. I am glad to only have to go over there once next week instead of three like this week.