Home

Heaven Sent

Sep. 29th, 2009 | 01:38 am
mood: grateful grateful


One year ago today, Heaven received a new Angel, and I received the Gift of Life.  Be an Organ Donor and keep your giving spirit alive in others.

Organ donation is a very difficult topic for a lot of families to talk about, but it is the most important conversation that you can never have after you die.  There are very, very rare instances where religious issues might preclude donations.  If you are using that as a reason, you should check to see if that is a valid excuse for you to use.  I think that people don't want to talk about or think about organ donation because they have a fear of maybe not exactly dying but of losing a part of themselves.  Whatever you choose to believe about death and its process it probably still includes the belief that your soul separates from your earthly body.  The earthly body is not needed; therefore, you shouldn't feel that you are taking something from yourself.  Your Self, Soul, Essence will be in your Heaven, and your body remains as a perfect way to spread joy, life, and love to another person who desperately needs it.  I was always afraid of being an organ donor when I was younger because I was uninformed about what the process really was.  I felt very uncomfortable with the idea of pieces of me being taken away.  As I got older, I realized that I probably couldn't donate anything anyway.  My major organs are probably a big no-no, but I assume that I can donate skin, bone, eyes, etc.  Just typing this now reminds me of the discomfort I felt back in those days.  Those day of never really believing that I would one day need oxygen 24/7 or even a transplant.  It is easy to be the organ donor, but it is the emotions of the donor's family that become the real concern.  When you see your teen or adult child say that yes they want to donate it brings to the front the mortality of even the very young.  Usually people think of adults that need transplants, but there are thousands of children that also need transplants.  As parents we owe it to other parents with small children who might need life saving organs, that we will commit to donate their organs.  No, it isn't making a death wish on our children.  It is helping work toward a society that will do whatever it can even in its direst state to help others.  Donor families are making the most selfless act of their lives.  They never imagined the choice that they are having to make when their world is falling apart.  Just as they can't imagine the joy and graciousness they bestow upon the family of the person receiving the organ.  I don't know if I will ever be able to meet my donor family.  I greatly do want to meet them, but I want to let them know the gift of their son's lungs has brought more love, joy, and compassion into our lives. My life was also very nearing its end.  I got the impression that we could have been talking only months of time left.  From the bits and pieces of information that I gleaned over the last year here is my assumption of my donor. 

I do know that he was young.  Too young.  He was a young man just starting life, and at 21 he had the potential for decades more life in which he could positively impact society.  I know that he was African American, and I know that he had gotten a tattoo within the last year of his life. What I infer from that is that he was a healthy young man who might have had an exciting or adventurous side.  I say healthy simply because his lungs were great enough to come to me.  The tattoo makes me just think of a happy, adventurous type especially at such a young age.  I have other pieces of information I have gleaned through news reports, newspaper articles, and internet searches.  These pieces just fell into a certain period of time, a certain day, a certain action, and a certain decision.  I believe that my donor may have attempted to committed suicide, and instead he ended up brain dead. I remembered hearing on the news about a shooting at a home in S. Arl.  I wondered if it could be that young man. There was a young man who died of a gunshot wound on the day I got my lungs.  This young man was also African-American.  According to coroner's records for the county we are in, his time of death was about 1:00 p.m.  I got the call that they had potential lungs for me just before 5:00 p.m.  Taking into account the time it takes to deem them healthy and harvest the lungs, that time frame seems reasonable to me.  My surgery started later than 5:00, so that allowed for harvest time and travel time.  I asked where the lungs were coming from, but they aren't allowed to tell you that information.  I think that the young man was very critical and finally was brain dead, so they then called in the Organ Team to discuss the options with his family.  All that day people kept coming in and looking at me.  There were people I hadn't seen before, and it was just really busy.  Then when I got The Call I learn what had been going on all day.  All day they knew there were potential lungs for me.  I had to be stable, and the lungs had to be a perfect match.  They didn't want anybody mentioning potential lungs to me at all, so they were all excited out at the nurses' stations all day. :) Looking back at my thoughts about my donor, I wondered if they were checking and waiting all day for his family to decide to take their son/brother off of life support.  So this arbitrary time of death I found actually was the time of death when he was taken off of support to have his lungs harvested for me.  His family was living a nightmare just as my family was.  We were on a downhill slide on my end as well, but only my donor could save a life while losing his.  The selflessness my donor family had inspires me everyday to live to my potential, to go for my dream, and to do something special in honor of the young man who saved my life.  I would love to do something simple like go to a sporting event for his favorite team wearing jerseys, go to a concert of his favorite band.  I am not myself alone.  I have a gracious young spirit that is with me, and I owe honor to both him and his family for their most amazing gift of all.  The Gift of my Life. 

Link | Leave a comment {1} | Add to Memories | Tell a Friend


So I HAD to rant...I had to....seriously

Sep. 22nd, 2009 | 11:33 pm
mood: angry angry

We love the new FOX show Glee.  It is a witty, smartly written, greatly produced show about the experiences of outcasts in high school.  They send so many good messages out, and most of the information is something that should be in conversation between teens and their parents.  I was reading a complaint board that had a lot of fighting back and forth about the appropriate nature of the show.  I made me a little twitchy.  So I read another page, and I developed a big toe tap.  Ok, something brilliant needed to be said, so I added. :)  I just tried to make the point that the show isn't the problem.  It is the parents.  So now I post my speech for you. :)   OOOHhh aren't you lucky.  :/  I would like to know if anyone else watches it..

I find all of the different views posted here very enlightening.  I must just be a complete contradiction unto myself.   I'm a homemaker, former high school teacher, mother of a teen and a tween, a woman reared in the conservative part of TX, and a woman baptized in a conservative religion.  I absolutely ADORE this show not only for its music, its talented cast, and its gifted writers.  I admire its guts to show the reality of my and many others' high school situations.  It was never marketed to young children or tweens.  Yes, it might appeal to them, but many things appealing to tweens are "shameful" or "corrupting".  Alcohol, drugs, tobacco: these corrupt younger and younger children every year.  Those are in kids' everyday lives.  Parents are to keep them away from what their family deems negative influences.   I imagine that some parents on here would let their kids listen to Britney on her CD.  That is a much better choice than allowing a younger child or tween to see her in concert if you are trying to stay away from sexual imagery.  That is a reasonable choice for a parent to make when wanting to keep their child shied away from certain issues/topics/things.  Glee is a show aimed at older teen/20/and even 30s.  From day one it has posted its ratings and described itself as having black humor and difficult topics.  If I were a parent who was really wanting to let my child watch the show, then I would have invested time into learning about the creator/producer/director.  Looking at previous works should give you some idea.  It is very ill-advised for parents to show up with family in tow to watch just because you ASSUME something will be to your liking.  The sex in the show is really nothing different than what happens in many schools.  I won't say all schools because that is a generalization.  I live in a conservative town, but one year I taught a 9th grader who already had a 3 month old child.  Now that is a direct lesson in sex to everyone in that classroom, and I guarantee you there weren't parents to approve that for their children to see.  The show does have great music and fun dance sequences.  I allowed my kids to watch the first episode with me, and I previewed the second and third episodes.  I did let them watch most of the 2nd episode even with the sexual discussion because I don't want them to be shut off from an important topic that they need to discuss with me instead of their peers.  For all of you parents who hope this show would go away and stop dragging your "innocent" children in to its grasp, I guarantee you that they have a pretty good chance of having been exposed to worse already.  For the teens and younger college students it is an entirely different balance of things.  The older the teen the more of these experiences they will have either in a firsthand discussion, relationship, or observation.  Young people who have felt left out of the group or an underdog should feel some relief to see that others have had the same situations that they were afraid to talk about.  Whether it be about becoming sexually active, proudly declaring sexuality, or simply becoming more confident in themselves with the support of others, Glee provides a glorious way for people to open up dialogue while still keeping a "lighter side".  So, here I sit, the conservatively reared, former high school teacher allowing my children to see the sections of the show that I feel are appropriate for them.  My younger child due to her age watches more the musical productions and hallway banter.  My teenaged son is allowed to watch the part about the celibacy club so that he can understand that there are a lot of thoughts and feelings young teens have.  This allows us to be there if he needs to discuss things with us.   Griping about this show is a way to wimp out on parenting.  If you don't want your kids seeing some scenes, then record the program, and show them the allowed sections.  If you don't like it at all, you just keep doing what you're doing in your home, but don't try to condemn a show that can actually be beneficial to so many adolescents.  Sex is not a bad thing.  If a family doesn't want a variant of Sex Ed. (albeit minor) shown to their child, then don't watch and open up your little books at home.

Link | Leave a comment {1} | Add to Memories | Tell a Friend


Oh yeah, we're sick

Sep. 21st, 2009 | 02:11 pm

First Bunny starts throwing up...in class...on the cord to the overhead projector.  She missed two and a half days of school.  Now Bear is sick.  He hasn't thrown up, but he has run a temperature whereas Bunny didn't.  So I sit here wearing my beautiful blue mask while watching Bear play Star Wars KOTOR on XBox 360.  I had forgotten how HOT these things can get.  If I am in my room everyone else with cooties has to wear a mask, but if I come out, then it is only fair that I be the one in a mask.  We're having flashbacks to a year ago.  LOL  Its a good thing that I bought hundreds of masks (and thousands of gloves LOL) because I have a feeling that the Fall is going to be one constant mask fashion show. 

Link | Leave a comment {1} | Add to Memories | Tell a Friend


Enjoy the rain

Sep. 16th, 2009 | 04:29 pm
mood: contemplative contemplative

We have had quite the rainfall around here for the past week.  I have always loved a good thunderstorm, but I used to dread going out in the rain.  It wasn't because of the fact that I would get wet.  It was because I couldn't breathe.  Humidity was so difficult for me.  When I was younger, I would sit in the bathroom with the shower blasting as hot as it could go.  The steam was supposed to help me cough up the secretions that were making me sick.  Think about what it is like going into a steam filled room.  The air was so thick it, and it would make me cough and cough.  When I would start coughing, it was like a roller coaster zipping down a hill.  It would be a very taxing experience sometimes.  That was when I could actually perform on drill team, miss treatments, be "normal".  (Okay so my normal is still a bit goofy. :)  The last few years brought with them such a low lung function that just a little cough would send my heart-rate skyrocketing, my oxygen sats through the floor, and many times end in me throwing up.  Think about being afraid to move or do anything that could cause a cough.  During the day think about how many times you might cough, and imagine not being able to catch your breath for several minutes.  I'm talking up to 10 minutes.  KalBot was always very amazed at how well I could "hide" my cough.  I could go out to dinner and a movie and never cough; however, the minute I would get back in the car, the dam would burst.  I think that little "talent" had led a lot of people to miss how sick I really was.  They never heard me, and if you don't see/hear something, it isn't really there. Right? Hmph.  ;)  (I wish I could have that kind of self-control in other areas.  Pepsi calls me, and I can't say no. :)  This past week made me think of the rain in a different way.  I walked to the mailbox slowly, barefoot, and with no umbrella.  Slowly, not because I had to lug a tank of oxygen but because I wanted to.  No umbrella because I was actually enjoying myself.  I thought about the little kids who like to play in the rain.  That is a joy of freedom!  Freedom...that is what I have.  For a moment I thought about splashing around in the backyard.  I figured that the kids would think I was nuts and the dog would have too much fun, so I didn't. LOL  Spend time this week and enjoy your "moment in the rain".   I don't think you will be sorry. :)

Link | Leave a comment {1} | Add to Memories | Tell a Friend


Ponderings from a cold shower

Sep. 12th, 2009 | 11:44 pm
mood: contemplative contemplative

While I was shaving my legs in the shower this evening, I had my Deep Thoughts with Jack Handy  moment.  One year ago I couldn't shave my legs.  One year ago I couldn't have just finished the 1.07 miles on the treadmill that sent me to take the cold shower.  One year ago I couldn't stand up long enough to take a shower.  I was thinking about what it was like when I got The Call.  Did I get the word out to everyone that I wanted to tell?  I think that I did.  Thank God for e-mail.  I only made four calls ( I think ).  I remember my mom being in Target with Bear and Bunny, and she was arguing with them about what they wanted to get me for my birthday gifts.  Then I called.  Needless to say they got to buy whatever they wanted for me, and I got a cool pink planner and a Scooby-Doo DVD.  :D  Best gifts ever. :)  I remember calling Tinkerbella.  I was not quite freaking out, but I was full of excitement.  I think she freaked out for me.  That was the best feeling ever!  Having known her since 3rd grade, she had put up with plenty of crap from me and experienced a lot of joys with me.  I wanted her to be one of the first to find out because she means so much to me.  My dad was a few hours away at the farm, and I knew that I wouldn't get to see him before the surgery.  He assured me that he was coming up regardless of whether it was a false alarm or not.  KalBot and I had quite an unusual moment where I told him, and that still cracks me up to this day.  I remember being shocked that I was possibly going into surgery within 3 hours.  It ended up being about 5 I think.  I remember being ticked that I had to shower myself with TWO packets of blue disinfecting soap.  Like I could shower myself before anyway...much less two times in a row!  ROFL  That is one of the only times I remember telling E to crank my 02 waaaay up before needing it that way.  I fully remember being wheeled down the hallway thinking "this is too weird".  It is impossible to describe what it is like knowing you are about to have something so significant cut out of your body.  I wish I could remember exactly what I said to everybody before I went in.  One of the last things I remember was Mom leaning over me.  I think I said, "I'll see you later."  I had no fear, and I meant every word.  Now if I didn't actually say that, I meant to!  ROFL  I could have dreamed that.  When I got into the room, it was the most people I had ever seen in an OR.  I had been in a few times before, but this was so busy.  I was unnerved that they were going to have to put an IV into an artery in my wrist.  OK I was about to become human fillet 'o fish but THAT bothered me.  When you face the ultimate moment of your life, you must face it head on...no indecision...no fear...no regret.  I have many more thoughts I will share later, but I think they are more appropriate for the days right before the T-Day birthday. 

Link | Leave a comment | Add to Memories | Tell a Friend


Almost there...

Sep. 11th, 2009 | 02:39 pm
mood: contemplative contemplative

October 1st will be my one year transplant evaluation.  It is only two days after the actual birthday.  I prefer to call it my Transplant Birthday.  Anniversary to me means continuation of the same, and Birthday means a new life.  Tinkerbella says it is like I had twins and they are turning one.  LOL  I guess it will be Happy Birthday to My Twins!  :P  I have be rereading the entries from now until T-Day.  I cannot ever forget the sensations of being sick, but I have forgotten a lot of the situations.  After so many years of the same crud, all the days blend together.  One day being out of breath, throwing up, and coughing up blood is just like any other day.  I am very desensitized to anything health related.  I say suck it up when other people are freaking out.  It is the way I am conditioned.  I have told myself for years that it "is the way it is".  There is nothing you can do about most things.  Yes, you can get treatment, have surgery, wish it hadn't happened.  The reality is #$(% happens. You get up and get on with your life.  You can't ignore things like end-stage lung disease, cancer, depression, etc.  You can however REFUSE to be defined by the limits that being ill will try to put on your life.  Life doesn't stop around you when something upsetting or devastating happens.  If everyone just curled up in a ball and felt sorry for themselves, the world would shut down.  There were much more serious things happening in the world than me being sick, but I realize that for many people my illness was a world stopper.   Being stubborn can serve you well...refuse to give in, refuse to give up...instead give it your all.  If you want to reach your goal in life, you can find a way.  It might not be telling yourself you can make it until a set of lungs arrive, but it might be believing that you are a worthy person.  I want every person to realize that a one day pity party is a great thing if you need it, but dwelling on negativity every day of your life WILL ruin your quality of life.   I might have physically had an absolutely miserable situation, but I was still capable of laughing at myself and the things around me.  Next time you are facing adversity, believe in yourself and realize that it isn't the end of the world.   That particular moment or day might suck eggs, but somewhere around the world there is someone in a much worse situation.  Now back to my regularly schedule double feature of GLEE. :D

Link | Leave a comment | Add to Memories | Tell a Friend


Clinic update

Jul. 17th, 2009 | 03:33 pm

I had a Clinic appt. yesterday, and everything is looking great.  Dr. R is very pleased with how things are going.  My creatnine was 1.21, so he wants me to drink a lot more water.  My Prograf was 7.?, so I had increase my morning dosage.  I am going back on Thursday for a blood test recheck for those two levels.  We have been having a lot of fun this summer.  I have been swimming for the first time in a couple of years.  Tinkerbella's parents told us to feel free to swim in their pool during the week whenever we want.  It has been great.  I think we have been about 4 times.  Bunny has swimming lessons for the next two weeks at 9:00 a.m., so we will swim in the afternoon a few days to practice her strokes.  She can swim, but it never hurts to strength your skills.  Bear immediately declined the opportunity.  LOL  Bunny went to my high school for volleyball camp four days this week.  They scrimmaged today.  They just added the points from each game, and her team won with 45 points.  Very nice.  She has her final day of club volleyball camp tonight.  I am sure that she is glad everything is winding down.  Bear had to get work done at the orthodontist yesterday, so he is miserable.  He had some new wires special ordered, and they came in two weeks earlier than expected.  He now has 4 rubber bands, and they shaved some of his teeth.  Ouch!  Bunny might get her's off on the 29th.  She is really looking forward to that.  We are having fun with our doggy Dillon.  He is a big Golden, and he is a sweetie.  He LOVES when his Daddy gets home and just leans on him and stares up adoringly.  LOL 

Link | Leave a comment | Add to Memories | Tell a Friend


Hot, hot summer

Jun. 29th, 2009 | 06:31 pm

It feels great to have so much energy, but I can't always do anything.  I can't be outside doing activities at over 85 degrees, so unless we swim or do stuff in the morning....  We went to see Up  this weekend, and we loved the dog Dug.  He reminded us of our doggy Dillon.  Squirrel!  Bear finished robotics camp at Kal's school district, and Bunny starts volleyball camp at my former high school in a few weeks.  She is doing a developmental volleyball league right now with the club volleyball courts.  They have one week left of games.  They have only won one game, but they are still having a lot of fun.  The entire team from the YMCA moved over to the youth league, so they aren't having to get used to new teammates.  Since this is our team's first time doing volleyball here, it took a little bit for them to get used to it. 

Link | Leave a comment | Add to Memories | Tell a Friend


So what's new?

Jun. 15th, 2009 | 08:38 pm

Soooooo...... I've been away a while, but I am going to try to pick up the posting.  LOL 

I have no idea where I left off with the last post, so here is a brief recap:  

*after living with GrammyRose for almost 2 yrs, we bought our own new home

*adopted a giant Golden Retriever named Dillon that brings joy everyday

*our sweet Misha kitty passed away and it broke our hearts
 
*KalBot started college with Western Governor's University

*Bear finished 7th grade and Bunny finished 3rd grade

*we walked the CFF Great Strides Walk and raised just over $2500 in donations

That is pretty much it...oh and we found and rescued a baby bat today.  We named him Fritz. :)

Link | Leave a comment {1} | Add to Memories | Tell a Friend


Apparently my toenails snore!

Mar. 4th, 2009 | 09:08 pm
mood: exhausted exhausted


Today was the BIG moving day!  The movers arrived about 8:45 this morning while I was taking BearKal to junior high.  KalBot, GrammyRose, and I helped direct the flow of furniture and boxes.  The scariest part was watching the men try to get a sectional around a corner and up a flight of stairs into the game room.  Blessedly no injuries to man or house occurred. :)  Even after much advice to not overdo it, I think that I did.  I kept thinking, "just one more box."  I crashed hard on the couch upstairs, and it seems I snored horribly. LOL  Of course when I woke up I had a KalBot asleep on the other end of the couch. :)  We aren't going to spend the night there until Saturday night most likely because we aren't getting the fridge and cable/internet until Friday, and BunnyRose has a slumber party that night.  We don't want to spend the first night there without her. :)  Back to sleep for me. :D

Link | Leave a comment {2} | Add to Memories | Tell a Friend


Trip down memory lane

Feb. 23rd, 2009 | 10:56 pm
mood: silly silly

I was just sitting here playing on FB, and I could hear KalBot giggling next to me.  I finally looked over and he was reading my blog from the days in ICU.  I started glancing over when he would laugh, and I started cracking up also.  It seems like forever ago that I was playing the trumpet on the vent, listening to constipated cows, watching Kal brain himself on my bedrail, scare the nurses with my laughing fits, and dressing up like an escaped mental patient for PT!  ROFL  Those were some good times I tell ya!  No question that it was some rough going on some days, but oh boy did we have some good laughs in between.  I don't think that anyone can deny laughter really is a great medicine.  I had a funny thing happen the other day at Build-a-Bear.  This little boy of about 3 was trying to get around me, and he said excuse me and just stared at me.  I was thinking that he was probably thinking I was a slow moving lady.  It wasn't until about an hour later when we were driving home that I realized he was probably staring at my mask!  I had totally forgotten that I had one on.  :)  I think that is a defining moment.  It isn't that I am finally used to wearing the silly thing, but it is the fact that I feel so "normal" that it didn't occur to me that I was any different.  Now THAT is odd.  LOL  It has been years now that I have moved around with things stuck to my face, so I am slowly getting used to blending back in with everyone.  I guess that I need to do something else to myself to stick out like a sore thumb.  I vote for pink hair.  I can't get the tattoo or the piercing, but the lungs I got came from a person who had gotten a tattoo in the past year.  I guess that will have to count.  Sadly I no longer make the horrifying coughing noises to scare the snot out of KalBot, but I do make a new noise.  When I do my spirometry, I tend to make an extremely loud, indescribable noise.  Tonight as a matter of fact, the noise was so bad, that I could just FEEL KalBot looking at me.  I started laughing mid "huff", and I had to look at him with my evil eye.  He was laughing and said that he was hoping that I would not notice.  LOL  Too late!  At least MomoCat is no longer scared of the huffing MommyMonster.  He used to hiss at the portable spiro machine, and he would run when I started blowing.  I guess for fun now I need to get out the PediPaws and chase him around. >:)  On another note, I finally got to jog in the neighborhood with KalBot yesterday.  We have been walking a couple of days a week, but I was too chicken to run yet.  I was sure that I would look like Super Dork trying to job, but it wasn't too bad.  We only jogged about half a block, but considering I haven't done that in many years, I consider that a success.  I guess that we will hit the track one day this week. 

We close on our new house at 10:30 Friday morning. :0)  We will probably just get our junk out of GrammyRose's garage for now, and we will wait a week to have the stored items delivered.  Spring Break is just a couple of weeks away, so that will give us plenty of time to move stuff.  Any budding painters out there? :P  BunnyRose wants to live under the sea with Nemo, and BearKal wants dark green forest world.  We had to talk him out of metallic gold and silver.  I don't really think the nightclub look works for a 13 year old.  I am torn between chocolate brown and slate grey for the dining area.  I have all these great plans for KalBot and others to do since I can't paint.  LOL  I can tape, but the fumes are a no-no for me.  Dr. B said that it would even matter if I got "green" paint that is formaldehyde free.  Fumes are fumes.  I guess that I will just be on the other side of the house lining shelves and putting away dishes.  :)

Link | Leave a comment {2} | Add to Memories | Tell a Friend


Happy Birthday Bunny!

Feb. 20th, 2009 | 09:30 pm
mood: bouncy bouncy


Today BunnyRose turned 9!  We planned to take her out to dinner tonight, and we weren't going to tell her where we headed.  We surprised her by going to Buffalo Wild Wings.  That girl loves her some ribs and wings. LOL  Tomorrow we are heading to Build A Bear, and she will take some friends to play laser tag in a couple of weeks.  It looks like we are closing on our new house next Friday!  I told BunnyRose that I felt like it was better to plan a friend party after we had moved and weren't in such a crazy time.  It will have been less than a month from starting to look at houses to closing.  I am so glad that we found a great house so quickly.  I bet my furry trio will be so happy to get to roam freely again.  There is storage under the stairs in the new house, and I plan to store a lot of the medical equipment that I no longer need in there.  I will like getting to have that stuff put away. :)

Link | Leave a comment {1} | Add to Memories | Tell a Friend


Interesting things you find out...

Feb. 19th, 2009 | 02:50 pm
mood: excited excited

My Clinic appt. yesterday was great!  My spirometry is up on both numbers, and the x-ray looks good.  I don't remember the last time I didn't get some sort of comments about shadows or minor things on the pictures.  I still haven't heard what the blood test levels were, so I hope that the Prograf levels are still stable.  I did find out one interesting thing however.  When Dr. B was trying to to find out how many times I was actually treated for rejection, he was going through all my previous bronch results.  It turns out that I tested positive for RSV shortly after the transplant!  Now that shocked me.  I have been tested for that in the past, and I always came back negative.  Dr. B said they were very surprised.  I was too!  LOL  It is a really bad virus for preemies and infants/toddlers.  In the fall the hospital at Cooks was always a "dangerous" place to be because I had to be careful not to catch RSV from someone in the hospital.  I find it ironic that I tested positive for it in an adult hospital while in strict confines.  I could have caught it myself, but I wonder if my new lungs already had it.  I guess that I will never know, but at least I got past it without any bad results. 

On the good side of things, we are buying a house!  We have completed the option period (I believe, or within one day of it) and are just waiting for the VA to complete all the paperwork and get it back to the lender.  The new house is just around the corner and about 4 blocks down from GrammyRose.  The kids are very excited!  We could close on the house next Friday at the soonest.  I hope that I remember to do laundry and cook for more than just one. :P

Link | Leave a comment {1} | Add to Memories | Tell a Friend


Dusting off

Feb. 5th, 2009 | 12:53 pm
mood: cheerful cheerful

Okay, yet again I let time get away from me. :)  I had another blood test for Prograf levels this week, and my levels are a little low again.  It seems like I am adjusting the levels every 5 days. LOL  As long as it keeps working, I don't mind.  I have Clinic again next week, so we are going to try to move my next blood test to that date.  I can't get to Clinic and get Bear to school when Grammy is working, so we have been shuffling tests around.  At least we aren't frozen in anymore!  That really messed up the testing a couple of weeks ago. 

Kal and I have finally started looking at houses.  :)  We took the whole clan last night to look at our favorite, and the kids went nutso.  I had told them not to, but you know how that goes. LOL  This house is literally around the corner, so the kids wouldn't have to switch schools yet again.  It is on the same street as Tinkerbella's parents. :)  We will see how everything works out.  I guess that I should start purging items now so that we don't haul stuff to a new house that will just end up in an attic.  This house would have a "cat room", so the cat box would be locked away.  Yay! 

My hair is still thin and thinner, so I decided to get about 6 inches cut off.  It is now about midway between shoulders and chin.  It actually did make my hair look a bit thicker, so I am happy with it.  It is also less tangled after I wash it. LOL 

I have been keeping up with my exercises at home since ending rehab.  Bunny likes to do the exercise dvds with me.  I have the 8 Minute Core series and the 10 Minute Abs dvds.  So far we have just used the 8 minute one, but it is just right for my ability at the moment.  I have also been riding the little bike pedal machine that we got from the neighbor.  I use it while I catch up on the DVR'd shows or read my book.  I am re-reading the Twilight series.  I read the first two again in the last two days.  I just love them. LOL

Link | Leave a comment {1} | Add to Memories | Tell a Friend


And she's done!

Jan. 27th, 2009 | 12:58 pm
mood: sleepy sleepy

Yesterday was officially my last day of pulmonary rehab.  It seems like I have been attending sessions forever, but I am only on day 120 post-transplant today.  That is a YAY!  Of course today when I want to go outside and play basketball or walk for my exercise, it is getting icy and staying at 30 degrees.  I can't be out for a long period of time when the temperature is lower than 45 or higher than 85 (I think 85 is correct).  I think Kal has a secret weather controlling satellite hovering right over N. Central TX just to keep the weather bad enough that he won't have to jog with me. :)  I accidentally forgot to go to my blood work appointment yesterday morning, so I had it rescheduled for tomorrow morning.  Now the forecast shows the weather could actually be worse then.  Joy.  I guess that if I can't safely get there then I just will have to reschedule again.  Maybe I need to find a lab around here to use when I simply have blood work to do on non-Clinic days.  The kids were disappointed that we didn't have school closings today.  UT-Arlington is closed, but the AISD isn't.  I am sure when they find that out they will REALLY be mad. LOL  I am really tired today.  Apparently now that I have new lungs, I snore terribly. LOL  I guess now that I actually get air into my body I am able to make noise.  I should just tell Kal it is revenge for all the years of his snoring. :)  Though it could be that I am tired because of Sammo climbing all over me during the night.  Those cat feet HURT when they are pressed against your chest for what seems like an eternity!  The cats must have been cold because they hounded me a little more than usual last night.  I always feel bad when I stretch out my legs and boot some furry body. :)

Link | Leave a comment | Add to Memories | Tell a Friend


Almost finished

Jan. 23rd, 2009 | 08:21 pm

I was officially discharged from the physical therapy side of pulmo-rehab today.  I just have one hour for the respiratory therapist on Monday, and then I am officially finished with pulmo-rehab!  Yay!  I did 4 miles on the exercise bike today while I read my new vampire book (not from the Twilight series).  I walked one mile on the treadmill, too.  Today was the first time I walked at an incline of 1.5, so I wonder if I will feel it tomorrow. LOL  Bear is sick, and he is supposed to take the SAT in the morning.  I don't think that he will make it.  His cough is so bad in the mornings, and I have to give him aerosol treatments.  He is on steroids and an antibiotic for the next several days.  I think he will just be too tired from poor sleep over the last few nights.  Bunny has a basketball game tomorrow afternoon, and I they have team pictures right before the game.  I am going to check out the walking programs on GrammyRose's treamill so that I can figure out my next workout plan.  I need to use it three days a week, so I need to find some other fun things to do on alternating days.

Link | Leave a comment {1} | Add to Memories | Tell a Friend


Dance Dance Revolution!

Jan. 16th, 2009 | 08:23 pm
mood: crazy crazy


Ok everyone must now stand up, back away from the computer, and do the CABBAGE PATCH!  (If you have no clue what I am talking about, look on YouTube or something. LOL)  My biopsy results from yesterday's bronchoscopy shows NO REJECTION!  Therefore we must all celebrate with the cabbage patch.  No, you are not standing there like a doll with your name on your bum!  You should be grateful that I didn't say the Running Man or the Hammer Dance. :P

DrewBysh said that he did it, so now you have to!  Come to think of it, you must also video yourself and send it to me. Muahahahahah!
Tags:

Link | Leave a comment {4} | Add to Memories | Tell a Friend


Clinic Update

Jan. 16th, 2009 | 09:24 am
mood: satisfied satisfied

Yesterday was my regularly scheduled Clinic appt. and my 3 mo. post-transplant bronchoscopy.  The visit with Dr. R went very well.  My x-rays are looking good.  Some something-or-other that was there is now gone.  LOL  I still have some marking on my right side, and it seems that my diapraghm doesn't work as well on that side.  The fact that the diapraghm has trouble explains all those horrible cramps that I had in that area when I would cough hard for a prolonged period.  It would hurt so much, but I never knew what caused it.  I asked him if that could be the reason for the cramping, and he said yes.  Mystery solved!  He thought that he felt my spleen, so I am having a sonogram of my spleen on Monday morning just to check it out.  I hope they warm that gel!  Brrrrr.  I actually have to go on a diet plan!  ROFL  It is sort of funny since I had such a hard time gaining weight at first.  I asked him if I can follow a real diet plan, and he said I could.  I just had to go get my vitamin levels checked first.  I am going to follow the Weight Watchers points plan.  I will have to modify it some since I have absorption issues to worry about, but I just need to drink fewer Pepsis and more water.  That is the hard part.  I have to go back on one of the medicines that I just came off of because Dr. R likes CMV mismatches (like my donor and me) to stay on it for a year.  He said just to save the other med that I have because I will eventually go back on it.  My pfts were better than last time, and I had been a little concerned since it was so cold outside that morning.  The cold air can make me wheezy, but I lucked out this time.  Grammy brought Bunny with her to pick me up from the bronch because the kids got out of school early due to finals.  Bear got to stay home since 13 year olds get bored sitting in waiting rooms for hours...apparantly 8 year olds do to. :P  I was back in the recovery/waiting area getting my IV, nasty bile med, and secretion drying shot when I saw Bunny come up next to my gurney!  Dr. R had brought her back to visit me. :)  Yay!  He was asking her if she wanted to do the procedure on me.  She just shooked her head like he was silly.  I told him to ask her again in 20 yrs. LOL  Bear got to spend the afternoon playing Maple Story on his laptop and eating cookies, cookies, cookies.  Sneaky boy!

Link | Leave a comment {2} | Add to Memories | Tell a Friend


How time flies!

Jan. 14th, 2009 | 12:13 pm
mood: busy busy

So...I got a little behind on my updating I see.  :)  Everything is going extremely well still.  I only have about 4 or 5 pulmo rehab visits remaining.  I am now up to one mile on the treadmill, a separate 20 minute walk, the third level of difficulty on the arm bike and the regular bike.  I am using the giant exercise ball to make my leg exercises more difficult.  Gotta work that core!  ROFL  Keeping your balance is really difficult sometimes when your mind starts to wander.  :P  I rode 3.48 miles on the bike today.  I still haven't gotten to jog at home yet, but I have jogged three times at rehab.  I might just wait to jog at home until I am finished with rehab because I want to skip days in between.  If I jog at home on my days off from rehab, I will be doing everything on back to back days.  Bear ran 1.5 miles in athletics the other day without stopping!  I am very proud of him.  Now he can't tell me that he can't jog with me. LOL  I am actually getting to do some school pick-up/drop-off now, and it is just like old times.   Really, really old times.  :)  The cats have finally figured out where I am!  Much to Kal's and Grammy's dismay.  LOL  Since Kal and I are finally sleeping in the same room again after over three months, the cats are now rooming with Bunny the Tormentor.  We started letting the cats visit occasionally, and they really liked getting to be in Mommy's room again.  It started with just a few minutes.  Then a couple of hours....Then all day....  THEN the trouble started.  Misha decided that bellowing at the Bunny's bedroom door would force someone to bring her to Mommy.  Okay, at first it was really cute.  Bunny started getting annoyed however, and eventually she started kicking MIsha out every time she started meowing.  The estrangement would only last about 15 minutes before Bunny would come back asking if I wanted her to take Misha back with her.  I would say no since she had barely been in my room, but then Bunny would start arguing with me.  I would cave in and then Bunny would leave with the cat.  SLAM!!!  The door would fly open, and I would hear, "I can't take it anymore!  Misha won't stop howling!"  ROFL  This cycle still repeats itself several times a day.  :P  Goblin was longer in coming into the bedroom.  She is my sweet baby, and I am sure that she has arthritis in her back legs.  I didn't want her to have to get carried back and forth because I think it is uncomfortable for her.  Well, she wasn't having that!  Eventually she started following Misha out of the door.  Sammo figured out where the party was also, and now the cat train is continually going back and forth from their room to my room.  The biggest problem is that they are afraid they are going to get stuck in there, so they eat and potty as fast as they can and want right back with me.  Misha will claw at the carpet or the door, and Grammy HATES that.  :)  Sammo has learned how to thump the door stopper on the back of the door, so you hear, "BOING, BOING, BOING," until you let him out.  Goblin is pretty laid back though and lets the other two do the dirty work so that she doesn't get in trouble. LOL  Of course she will roam occasionally, and Grammy noticed her coming OUT of the back bathroom.  The funny thing was that she didn't notice Goblin going past her to get there!  LOL  I am back to having my babies sleeping with me, so I seem to be the doorkeeper during the middle of the night for the potty breaks.  Oh well, it could be worse.  At least I am not near the dirtbox, and I get to see my little furry babies.  :)  Tomorrow I have another bronch to see how the rejection situation has resolved.  I am really feeling great, and my blood pressure is much lower since I have changed to Prograf.  My main problem now is the weight.  I really need to figure out a plan to lose some of this extra weight.  I never thought I would have that problem post transplant, but I guess that I am one of the unlucky ones.  I have told Kal that I am going to stick him on the Nutrisystem for Men - Diabetic diet plan, and I want to try it myself. LOL  Maybe I will follow my own Weight Watchers version like Tinkerbella did.  I still have the sites bookmarked I think.    I am on day 107 post transplant now!  I am still amazed. :D

BTW, Bunny has started her first basketball season, and I got to attend the first game.  They won!  Go Shark Shooters!  Go #10!

Link | Leave a comment {3} | Add to Memories | Tell a Friend


Catch Me If You Can!

Jan. 5th, 2009 | 09:33 pm
mood: accomplished accomplished

Guess who JOGGED today! Woohoo!  Now I am still taking baby steps, but I did jog on the treadmill.  I did my warm-ups, 15 minute walk, and balance ball exercises first, and then the PT asked me if I wanted to try jogging.  I had been telling them that KalBot and Bear had plotted against me to keep me from making them jog with me.  I think that I-Don'tWannaJogBot conspired to make me too sore on Saturday to jog, and Bear made it cold and rainy today so that he wouldn't have to jog at school or with me.  LOL  Its true...they did...I know it. :P  For the jogging, I walked for one minute, jogged for 30 seconds, and then walked for 1.5 minutes.  I think that I did 4 rotations, so I jogged for 2 minutes today.  That is a huge step!  It was really exciting.  My monitor didn't like my heart rate hitting 147, but considering that in the summer I had a 155 - 160 heart rate after walking to the bathroom, I think 147 is great. :)  I easily got my rate back to normal when the walking resumed, so obviously I am getting there physically.  I had to call Transplant Clinic to clear up a medication problem, and my coordinator was really excited when I told her that I jogged.  It is so cool that I almost feel like a shouldn't complain if I am sore tomorrow...ALMOST!  If I am as sore as I was on Saturday, I give up!  I almost couldn't get up and down by myself.  It reminded me of when I got home from the hospital, but it was a tad better. LOL  The last two rehab sessions have made me very sore, but it was different parts of my upper legs each time.  It also lasted only one day, so it could be worse.  Even though I stretch when I get home, it still is a lot of work on my body.  The PT told me to Google a website that is something like Couch Potato 5K.  It gives you a step by step training plan to get to a 5K.  I don't think that she even knew that it was my goal.  I still need to check it out, but I already told GrammyRose that we are all going to do it. :)  Muahahahah!

Link | Leave a comment {2} | Add to Memories | Tell a Friend